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Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12536   2010-07-19 09:23 GMT      
July 20th (tomorrow) marks the 12 week mark (3 months) since I came down with Bell's Palsy.
I can feel/see noticeable swelling of the ear canal of the ear on the affected side... I'm starting to think that maybe I have more then a simple viral case. Wouldn't a virus be GONE by now and the swelling of the nerve substantially reduced?

I never did get a brain scan when this all started but now I'm beginning to think it's something I must do! Eventhough a tumor on the nerve is RARE... it doesn't mean it's not possible!

Has anyone else experienced swelling of the ear canal? I would not have even known there was any problem in my case until I put my finger in my ear to scratch an itch and I could barely fit my finger inside it! My sister took pics of the ear on the weekend and it's crazy how much swelling there is in it! It's a shock to me that I can even hear normally with that ear!!!
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

sina

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50 posts

Location: United States california
Occupation: onset 4/2/2010
Age: 30

#12537   2010-07-19 09:44 GMT      
Hey FItgirl,

A tumor(very rare for a healthy person) on the
nerve next to the ear wouldn't give you those
syptoms. Swelling and itching on the outside
ear canal is most likely the virus re-activating
again. It usually starts with some sensitivity,
some swelling, an itch and then the blisters
will appear. That virus can outbreak more than once
You probably need to get back on another cycle
of anti-virals.

Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12539   2010-07-19 09:58 GMT      
Sina, I took the antiviral meds 6 weeks into my BP case and hated every day that I had to take them! I felt worse AFTER (even now) taking the antiviral meds then I did during the first 6 weeks of my case! I get tired easily now and my back often gets tight! Luckily, my chiropractor has helped reduce the neck tension I was feeling on top of it all!

My ear itch was just a normal itch, not like a deep itch. And I never experienced blisters in my ear! (I did however start to get a bumch of "pimples"/bumps that have been persistent ever since! Epsom salt baths do help with my stiff muscles and pimples... but I can't believe how long I've been living with this!!!)

... Since I took the first round of the antiviral meds, I haven't felt the same! So I'm very apprehensive to go for a second round!!!
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

MrsNewMommy

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96 posts

Location: Canada Ontario
Occupation: Lawyer; BP onset: October 9, 2009 95% recovered
Age:

#12541   2010-07-19 09:59 GMT      
Fitgirl,

This is why you need to consult your GP again to determine whether or not you are dealing with BP or RHS. If it is RHS then you may very well need another course of anti-virals. I hope the swelling goes away soon

sina

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50 posts

Location: United States california
Occupation: onset 4/2/2010
Age: 30

#12542   2010-07-19 10:07 GMT      
Yep, the normal itch around the entry to your ear
is where the blisters normally will appear. Get
to your GP and tell her you have sensitivity, swelling,
and now some itching along the entry to your ear canal.
The antivirals will prevent the blisters. As for BP or
RHS, their both exactly the same, it's just that RHS is
BP caused by a known virus(herpes zoster(chicken pox) but
they both are given the exact same anti-viral. Oh yeah,
I thought it was just me because I've had a very stiff back
also ever since I took the antivirals that is still lingering.

This post was edited by sina (2010-07-19 10:15 GMT, 50 days ago)

sage

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587 posts

Location: United States
Occupation: Biotech. Onset: February, 2000
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#12543   2010-07-19 12:25 GMT      
Fitgirl,

You may have an ear infection going on which could also be bacterial. If you can see an ENT they will be able to take a good look inside your ear canal and check for any viral break outs or if your ear looks like it may have bacterial infection. Otitis media can cause facial paralysis.

I am not saying that you have an ear infection due to bacterial- just thought I'd mention it. It could very well be BP.

Did they do a Lyme testing on you?

Are you having any pain in the jaw area? I've had two bouts of otitis media and they can be painful near the ear, behind ear and the jaw area. My BP was *not* caused by my otitis media-my otitis media happened many years later after I got my BP.

Many of us do end up getting an MRI at some point. If you have insurance coverage and it is something you can do conveniently, go for it.

Have you been swimming in public pools? any other way your ear may have got infected?

If it is RHS, like sina and new mommy say- you may end up with having to take more antivirals.

Hope you are getting enough quality sleep and rest to help with the healing.

This post was edited by sage (2010-07-19 13:12 GMT, 50 days ago)

Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12557   2010-07-20 08:05 GMT      
Sage,
Yes, I am sleeping great and resting as much as I can! (I mean, life goes on around us despite our BP, right?)
I honestly DO NOT think I have an ear infection! I have great balance, feel NO pain/pressure because of this swelling in my ear, and it does not disrupt my ability to hear normally!

I did NOT get Lyme testing done. I thought with Lyme you would get this ring-like rash? I did not get any rashes with my BP. (However, anything is possible, right?)

I do NOT have any pain in my jaw. I just recently started having jaw adjustments from my chiropractor though... I am pretty sure the swelling has been in my ear since BEFORE I started them though.

I do hope the doctor can help shed some light on this situation for me today... or maybe at least refer me to someone that WILL be able to help!
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

carie

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46 posts

Location: United States vermont
Occupation: work from home
Age:

#12563   2010-07-20 14:49 GMT      
Hi Fitgirl,
Good luck at your doc's! I hope he has some helpful info for you.
God bless, and let us know..
Carie
onset April 10, 2010

Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12564   2010-07-20 15:22 GMT      
Helpful info? HAHA... Well, he took a look in my ear with his ear checker (what's that thing called?) and said "There is no infection in there." I proceeded to ask if I needed to take a second round of antivirals then, he said "I don't think that will be effective. You have kind of surpassed that window of opportunity."

But he did mention that I am getting better (He actually said "You look like you are getting better" ... looking like, and actually being better are definitely 2 different things!)

So I still have no idea what exactly is causing the swelling in my ear. I will be investigating my options for an MRI soon though, just to put my mind at ease! But the more I think about it, the less likely I think it is a tumor!
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

grs

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201 posts

Location: United States Dallas, TX
Occupation: Software Programmer - onset 8/5/2009
Age: 40

#12566   2010-07-20 19:09 GMT      
Maybe your brain had to expand with all of the studying and learning that you've been doing.

carie

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46 posts

Location: United States vermont
Occupation: work from home
Age:

#12568   2010-07-21 08:08 GMT      
Is there any chance the swelling is something that has always been there but you never had a reason to notice? Just wonderin'
I'm confidant your doctor is right: You ARE getting better. Isn't it amazing that what our bodies do naturally, without us even thinking about it, is to heal? I mean, rally to fight an infection, rebuild tissue, regenerate nerves, whew! I sincerely hope that what you notice in your ear turns out to be actually nothing. But when WE know things just aren't right, and no one is giving us answers, it can be scary and frustrating! So, neither antivirals nor antibiotics are necessary... Most likely NOT a tumor... Doc doesn't seem concerned... Fitgirl, I hope you are able to find someone to listen to you and give you the answers and reassurance you need. God bless you as you go on, especially as you encourage so many of us!

and grs... lol!!
Carie
onset April 10, 2010

Fitgirl15

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Online status

186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12571   2010-07-21 13:00 GMT      
Carie,
My chiropractor is MORE concerned about me and my condition then my doctor is... nice!

GRS... well, my skull better start growing soon then! LOL
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

sage

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587 posts

Location: United States
Occupation: Biotech. Onset: February, 2000
Age:

#12599   2010-07-26 17:08 GMT      
Fitgirl, I am glad that they didn't find any infection, bacterial or viral. They would have likely given you more antivirals if they saw any (viral) breakouts inside your ear which happens with RHS. Sometimes you end up taking more antivirals than the initial round if the breakouts seem to persist.

I don't know why you have the ear swelling though. Some of us feel the 'feeling' of swelling and fullness inside our BP ear, but not real, visible swelling as you describe. I hope whatver has caused it, it is subsiding or has already subsided.

Regarding the Lyme rash- some times the Lyme rash doesn't appear.

http://www.ninds.nih.gov/disorders/lyme/lyme.htm

If you are interested you can check to see if Lyme is prevalent in your geographical area.

(But I am not saying you have Lyme

I can see signs of activity in the smile area in one of your videos you have posted . Hang in there. Best wishes for a full recovery.

Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12605   2010-07-27 07:58 GMT      
Sage,
I didn't have ANY of the symptoms of Lyme upon onset (that page describes flu-like symptoms linked to Lyme. I have always felt GREAT, even once BP was in full force! I only had 2, maybe 3 nights of painful sleeps and that was DUE to the inflammation itself!)

I continue to get these large (some are small), rather nasty and painful "pimples" or bumps along my spine now... they are really weird! I kinda think this is a sign that my body is STILL being attacked by a virus.

Oh boy... ANOTHER trip to the doctor for me! I really DO NOT want to take another course of those antiviral meds... I am just now (6 weeks after starting them!) finally feeling "normal" again!!!

Perhaps I DO need an antibiotic??? Are antivirals antibiotics?
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!

sina

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Online status

50 posts

Location: United States california
Occupation: onset 4/2/2010
Age: 30

#12606   2010-07-27 08:27 GMT      
Hey FIt

Looks like you still have "the bug" that's still
circulating in your body. Antibotics are for
bacterial infections. Antivirals are for viral
infections. Your pimples/bumps could be your
body just reacting to your BP. You know this
BP give lots and lots of different symptoms.

carie

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46 posts

Location: United States vermont
Occupation: work from home
Age:

#12607   2010-07-27 10:45 GMT      
oh my, fitgirl, it sure seems you are having an unusual go of it. like maybe you got afflicted with a virus that is extra potent!

sage mentioned Ramsey Hunt, which as you probly know is basically Bell's Palsy except that the virus is identifiable as herpes zoster (the chicken pox strain) instead of herpes simplex 1, and often blisters are associated with it. the herpes virus resides dormant within the nerve system, and when it is activated, travels along the nerve to the skin, where it forms a blister. I think I remember reading somewhere that the antiviral is only effective if you take it as soon as the blisters appear. but that's what you did, right? maybe you will have to try it again. sorry if you have to take another round. it took me a very long time to recover from it, too. awful.

whatever is going on, I sincerely hope you find a physician who will listen to you and take care of you! maybe check out herpes zoster on wikipedia, if you haven't already.

take care,
God bless you.
Carie
Carie
onset April 10, 2010

Fitgirl15

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186 posts
http://www.youtube.com/user/FitGi...
Location: Canada Calgary
Occupation: GeoTechnologist- BP onset: April 28, 2010
Age: 33

#12610   2010-07-27 11:31 GMT      
I wasn't prescribed the antiviral medication until 6 weeks AFTER the onset of my BP. I have been experiencing pimples for a long time, so hard to say if these are viral in nature or are just standard issue acne! They hurt a lot more then regular pimples, for sure!

If I have the choice between taking antivirals again (which may NOT even do anything) or not and just letting my body fight the virus on it's own, I choose the later option! Even if I do still have the virus in my body, it doesn't make me feel nearly as bad as the antiiviral meds made me feel!

But I also have GREAT news to report... I am seeing movement out of the apple of my cheek this week!!! When I smile, now I see my mouth, cheek & eye lid all move!!! http://www.flickr.com/photos/fitgirl15/4835389362/
WOO HOO! ... it's coming back, slowly but surely!

This post was edited by Fitgirl15 (2010-07-27 12:56 GMT, 42 days ago)
~ Jessica
Progress (@4.5 months with BP):
Tongue:95%, Cheek:50%, Lips: 50%, Eyelid:40%, Neck:40%
Eyebrow:0%, Nose:0%
Notable: can close my eye fully unassisted!
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